Current Problems in Cancer
Volume 29, Issue 6 , Pages 332-342 , November 2005

The Impact of Quality of Life Measurements on the Patient

  • Cynthia Chauhan

      Affiliations

    • Corresponding Author InformationAddress correspondence to Dr. Jeff A. Sloan, Mayo Clinic, Section of Biostatistics, Department of Health Science Research, 200 First St. S.W., Rochester, MN 55905, USA
    • ,
  • Wayland Eppard

References 

  1. Bly R . The Soul Is Here for Its Own Joy . Hopewell, NJ: Echo Press; 1999;
  2. Ballatori E . Unsolved problems in evaluating the quality of life of cancer patients . Ann Oncol . 2001;12(suppl 3):S11–S13
  3. Sharpe L , Butow P , Smith C , McConnell D , Clarke S . Changes in quality of life in patients with advanced cancer (evidence of response shift and response restriction) . J Psychosom Res . 2005;58(6):497–504
  4. Bernhard J , Cella D , Coates A , Fallowfield L , Ganz PA , Moinpour CM , et al.   Missing quality of life data in cancer clinical trials (serious problems and challenges) . Stat Med . 1998;17:517–532
  5. Wright EP , Selby PJ , Crawford M , Gillibrand A , Johnston C , Perren TJ , et al.   Feasibility and compliance of automated measurement of quality of life in Oncology practice . J Clin Oncol . 2003;21(2):374–382
  6. Edwards B , Clarke V . The psychological impact of a cancer diagnosis on families (the influence of family functioning and patients’ illness characteristics on depression and anxiety) . Psycho-Oncology . 2004;13:562–576
  7. Levack P , Graham J , Kidd J . Listen to the patient (quality of life of patients with recently diagnosed malignant cord compression in relation to their disability) . Palliat Med . 2004;18(7):594–601
  8. Detmar SB , Muller MJ , Schornagel JH , Wever LDV , Aaronson NK . Health-related quality-of-life assessments and patient-physician communication (a randomized controlled trial) . JAMA . 2002;288(23):3027–3034
  9. Moinpour CM , Lyons B , Schmidt SP , Chansky K , Patchell RA . Substituting proxy ratings for patient ratings in cancer clinical trials (An analysis based on a Southwest Oncology Group trial in patients with brain metastases) . Qual Life Res . 2000;9:219–231
  10. Sneeuw KCA , Sprangers MAG , Aaronson NK . The role of health care providers and significant others in evaluating the quality of life of patients with chronic disease . J Clin Epidemiol . 2002;55:1130–1143
  11. Harkness J . Patient involvement (a vital principle for patient-centered health care) . World Hosp Health Serv . 2005;41(2):12–16 40-3
  12. Patel KK , Veenstra DL , Patrick DL . A review of selected patient-generated outcome measures and their application in clinical trials . Value Health . 2003;6(5):595–603
  13. Carlson LE , Bultz BD , Morris DG . Individualized quality of life, standardized quality of life, and distress in patients undergoing a phase I trial of the novel therapeutic Reolysin (reovirus) . Health Qual Life Outcomes . 2005;3(1):7
  14. Mountain LA , Campbell SE , Seymour DG , Primrose WR , Whyte MI . Assessment of individual quality of life using the SEIQoL-DW in older medical patients . Q J Med . 2004;97(8):519–524
  15. Detmar SB , Aaronson NK , Wever LDV , Muller M , Schornagel JH . How are you feeling? Who wants to know? Patients’ and oncologists’ preferences for discussing health-related quality-of-life issues . J Clin Oncol . 2000;18:3295–3301
  16. Soni MK , Cella D , Masters GA , Burch SP , Heyes A , Silberman C . The validity and clinical utility of symptom monitoring in advanced lung cancer (a literature review) . Clin Lung Cancer . 2002;4(3):153–160
  17. Movsas B . Quality of life in oncology trials (a clinical guide) . Semin Radiat Oncol . 2003;13(3):235–247
  18. Sloan JA , Cella D , Frost M , Guyatt GH , Sprangers M , Symonds T , et al.   Assessing clinical significance in measuring oncology patient quality of life (introduction to the symposium, content overview, and definition of terms) . Mayo Clin Proc . 2002;77:367–370
  19. Suhonen R , Valimaki M , Leino-Kilpi H . Individualized care, quality of life and satisfaction with nursing care . J Adv Nurs . 2005;50(3):283–292
  20. Chauhan C , Eppard W , Perroti J . The patient advocate perspective on assessing the clinical significance for quality-of-life measures . J Cancer Integ Med . 2004;2(4):155–157
  21. Nijboer C , Triemstra M , Tempelaar R , Sandermann R , van den Bos GA . Measuring both negative and positive reactions to giving care to cancer patients (psychometric qualities of the caregiver reaction assessment) . Soc Sci Med . 1999;48:1259–1269
  22. Ring L , Hoefer S , Heuston F , Harris D , O’Boyle CA . Response shift masks the treatment impact on patient reported outcomes (PROs) (the example of individual quality of life in edentulous patients) . Health Qual Life Outcomes . 2005;3(1):55
  23. Moons P , Van Deyk K , Marquet K , Raes E , De Bleser L , Budts W , et al.   Individual quality of life in adults with congenital heart disease (a paradigm shift) . Eur Heart J . 2005;26(3):298–307
  24. Schwartz C , Bell Meisenhelder J , Ma Y , Reed G . Altruistic social interest behaviors are associated with better mental health . Psychosom Med . 2003;65:778–785
  25. Ritvo P , Irvine J , Katz J , Matthew A , Sacamano J , Shaw BF . The patient’s motivation in seeking complementary therapies . Patient Educ Couns . 1999;38(2):161–165
  26. Frost MH , Bonomi AE , Estwing-Ferrans C , Wong GY , Hays RD , Sloan JA , et al.   Patient, clinician and population perspectives on determining the quality of life scores . Mayo Clin Proc . 2002;77:488–494
  27. Cella DF , Tross S , Orav EJ , Holland JC , Silberfarb PM , Rafla S . Mood states of patients after the diagnosis of cancer . J Psychosoc Oncol . 1989;7:45–54
  28. Hack TF , Degner LF . Coping responses following breast cancer diagnosis predict psychological adjustment three years later . Psycho-Oncology . 2004;13:235–247
  29. Lazarus RS . Coping theory and research (past, present, and future) . Psychosomat Med . 1993;5:234–247
  30. Mullens AB , McCaul KD , Erickson SC , Sandgren AK . Coping after cancer (risk perceptions, worry, and health behaviors among colorectal cacner survivors) . Psycho-Oncology . 2004;13:367–376

PII: S0147-0272(05)00062-0

doi: 10.1016/j.currproblcancer.2005.09.008

Current Problems in Cancer
Volume 29, Issue 6 , Pages 332-342 , November 2005

Article Tools